Today was one of those difficult days when I was out doing (trying to do) errands. Let's just say it wasn't fun. Every now and then I'm faced with certain questions, stares, comments, etc. I came home today and ... let's just say needed an ear to vent to... actually, truthfully, I needed a shoulder to cry on. Although these things are frustrating and can make me grouchy, let's face it, it's really because they're hurtful. I know that people can't truly understand unless they've experienced what we're going through but all the same this can leave one bewildered. Okay, I get it; I'm feeling vulnerable right now and it's been a long day and I'm in terrible pain. e.g. I closed the window when I came home and it felt like my wrist was busting apart. ...and yes it hurts to type but yeah, it also feels great to be getting this off my chest. So here we go. I'll start the thread by saying one thing you should never say to someone who is chronically ill / disabled is:
-"Other people manage why can't you?"
- pick up their cane from their shopping cart and say, "you don't need this".
- Chronic Fatigue isn't really an illness.
- Chronic Fatigue is caused by depression.
- If you eat Goji berries you'll be cured.
- Pray harder; you lack faith.
- Here's a religious formula to follow and you'll be healed.
- You don't look sick.
- What
'really' is wrong with you.
- "
'my' doctor said Chronic Fatigue is..." 'everything it's not'
- somebody else with a disability does this; why can't you?
- roll your eyes when someone takes out their collapsible cane from their bag.
p.s. those of us who suffer know there are many more comments we've dealt with; you're welcome to bare your heart. take care.