I don't know where to start because it has been a long journey. 9 years ago, yes 9 years, the day after mowing the grass in NC, I noticed a rash on my inner arm. I didn't think anything of it. It was there for a few days and went away. That is when the terrible symptoms started. Headaches, dizzy, weakness, chronic pain, bedridden for weeks etc. I went from doctor to doctor to try figure out what was wrong. I went to university doctors and major clinics, still no answers.
After months of driving and trying to figure out what was wrong with me while my then husband was deployed and having a new baby, a neurologist diagnosed me with Lyme disease because my test was positive. I have never heard of Lyme disease but I was content to have a diagnose. But since he was a private doctor that I could no longer afford, I switched over to approved doctors through Tricare and the VA. They look over my medical records from the many doctors I was visiting. They decided to test me for Lyme again. I was tested over and over again. Those tests were all negative. Even blood tests I received at Duke and UNC and U of M. It was confusing because my health continued to decline. I could no longer maintain relationships, went through a divorce, moved back home, a single parent trying to get help from the list of doctors that denied I even had Lyme. Instead, I was diagnosed with fibromyalgia, chronic migraines, arthritis, nerve damage, anxiety, depression, personality disorder etc. I'm being seen by pain manangement, physical therapy, nuerology, hemology, primary care and many other doctors because of all the symptoms and declining health. It has been a nightmare.
To try to make this short, I pray and grew close to God at this time, sometimes my faith was shaken but I feel like my prayers are being answered and God has made a way. I found a great Lyme doctor here in Michigan, I found a great Lyme protocol that I started a month ago that is making me feel better slowly and I'm finding the light at the end of the tunnel with God and his grace.
The reason I posted this is if you are diagnosed with chronic pain disorders please research and talk to other health care providers because i believed the Fibromyalgia diagnose for years. It wasn't until I went to a chiropacter and an outside PM doctor that told me I do not have it basis on my symptoms. They really cared about me and made me think about what else it could be, they stayed on me to get retested and get help. I thank God and them for it. I didn't want to type this since I'm a private person but I feel like God has given me the strength, love and grace to slowly heal and also help others along my journey.
I pray for everyone with this disease.
After months of driving and trying to figure out what was wrong with me while my then husband was deployed and having a new baby, a neurologist diagnosed me with Lyme disease because my test was positive. I have never heard of Lyme disease but I was content to have a diagnose. But since he was a private doctor that I could no longer afford, I switched over to approved doctors through Tricare and the VA. They look over my medical records from the many doctors I was visiting. They decided to test me for Lyme again. I was tested over and over again. Those tests were all negative. Even blood tests I received at Duke and UNC and U of M. It was confusing because my health continued to decline. I could no longer maintain relationships, went through a divorce, moved back home, a single parent trying to get help from the list of doctors that denied I even had Lyme. Instead, I was diagnosed with fibromyalgia, chronic migraines, arthritis, nerve damage, anxiety, depression, personality disorder etc. I'm being seen by pain manangement, physical therapy, nuerology, hemology, primary care and many other doctors because of all the symptoms and declining health. It has been a nightmare.
To try to make this short, I pray and grew close to God at this time, sometimes my faith was shaken but I feel like my prayers are being answered and God has made a way. I found a great Lyme doctor here in Michigan, I found a great Lyme protocol that I started a month ago that is making me feel better slowly and I'm finding the light at the end of the tunnel with God and his grace.
The reason I posted this is if you are diagnosed with chronic pain disorders please research and talk to other health care providers because i believed the Fibromyalgia diagnose for years. It wasn't until I went to a chiropacter and an outside PM doctor that told me I do not have it basis on my symptoms. They really cared about me and made me think about what else it could be, they stayed on me to get retested and get help. I thank God and them for it. I didn't want to type this since I'm a private person but I feel like God has given me the strength, love and grace to slowly heal and also help others along my journey.
I pray for everyone with this disease.