What do you think??

[All4Christ]

I have been thinking about this for a long time....but I wanted to get some opinions before I actually start it.

A bit of a background about me - I have had epilepsy since I was 12 years old. Thankfully, my seizures are controlled by medicine. However - I know many who are not as fortunate. Going through years of my medicine not working - and me being unable to control my seizures - I have somewhat of an idea of what many people go through when they have uncontrolled epilepsy.

I have seen many secular support group websites out on the web - various forums, blogs, etc. However - I never have seen any Christian support group sites - and even moreso haven't seen any for Orthodox Christians.

So my question for you is this. Do you think that there would be an avenue for /benefit of having a website specifically for those who have epilepsy who are Orthodox Christians? Or - would it be helpful to expand it to people who have any chronic disease, disability, etc? Do you think it would be better to expand it to Christians in general? Or do you think this wouldn't work?

I have wanted for years to have a support group to be a part of myself - and I would love to be able to help provide a support group for others as well - especially if we could support each other spiritually as well.

Please let me know. I look forward to your replies.

[MariaRegina]

Have you checked out the recovery forum here?

[Thekla]

Personally, I think this an excellent idea. I would imagine that epilepsy could be socially isolating for some -what a great way to provide support. When our son was diagnosed with a long term condition, the internet was essential, and information from others online was key !

I don't know 'statistics', but perhaps it could initially include many "conditions" and 'split' as needed.

Regardless,
I admire your courage and concern :thumbsup:

[All4Christ]

Have you checked out the recovery forum here?
You mean for me to be a part of a support group there?

[All4Christ]

Personally, I think this an excellent idea. I would imagine that epilepsy could be socially isolating for some -what a great way to provide support. When our son was diagnosed with a long term condition, the internet was essential, and information from others online was key !

I don't know 'statistics', but perhaps it could initially include many "conditions" and 'split' as needed.

Regardless,
I admire your courage and concern :thumbsup:

Thank you :-)

But yes - you're right. It would make sense to start out that way. :-)

[MariaRegina]

You mean for me to be a part of a support group there?

No, unless you want to be a part of a support group.

I wonder if some Orthodox Christians post in recovery. I wonder if you could poll them. I don't know that forum at all. Never been there. Never posted there at least to my recollection.

I think there are some Orthodox Christians here who have epilepsy.

[All4Christ]

Very true - I'll look at it more now :-) Thanks!

[All4Christ]

Having a hard time finding many people in the recovery section who mention anything about epilepsy - there is a new forum for neurology - but....pretty much everyone posts about CP or other conditions. I will keep looking :-) Of course - if I include more than just epilepsy in this - that won't be quite as much of an issue.

[ma2000]

I think it's a good ideea.

[All4Christ]

Thanks :-)